MG Awareness Day
2023

MG Awareness Day 2023 MG Awareness Day 2023 MG Awareness Day 2023

MG Awareness Day
2023

MG Awareness Day 2023 MG Awareness Day 2023 MG Awareness Day 2023
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About the event

The MG Awareness Day will be an educational and interactive experience that reflects the many ways that Myasthenia Gravis affects daily living and strategies for taking control. The objective is to:

  • Raise awareness about the impact of Myasthenia Gravis for the general public
  • Educate people diagnosed with Myasthenia Gravis about treatment options,  maintaining a healthy lifestyle and safety
  • Address co-morbid health conditions such as high blood pressure, obesity, stress, and diabetes


The atmosphere will embody an "edu-tainment" model with engaging activities, empowerment messaging, social interaction and wellness vendors/partners providing information and solutions.


** This is also an opportunity for the community to get FREE health screenings as part of a holistic lifestyle.  We  want attendees to take advantage of the FREE health screenings, games, educational materials and FREE food.  Everyone MUST register for the respective city of their choice.


Visit all of our stations for a chance to win amazing prizes from our raffle!  

 


Our MG Awareness Day events In June 2023

Saturday, June 3, 2023 


WISCONSIN

Register here for:  Wisconsin 

Neuroscience Group Field at Fox Cities Stadium 

2400 N. Casaloma Drive

Appleton, WI  54913

Start time is 2pm CST for attendees

Sponsors/Vendor arrival : 1PM

 

2PM to 4PM - Program & MyMGLife Experience

4PM - 5PM - Chair yoga & social hour

5PM- 6:30PM - Free dinner buffet and social time.

6:30PM - Timber Rattlers game (MUST register in advance)



DELAWARE

Saturday June 17, 2023

Register here for Wilmington

Wilmington Riverfront

Constitution Yard

308 Justison Street

Wilmington, DE 19801

Start Time: 10AM to 2PM

8AM - Volunteer arrival  

9AM -Sponsors/Vendors arrival 

10AM - Registration/Check-in

11AM - Yoga 

12 to 2PM -Chair Massage & Reiki 

12 to 2PM - Axe throwing opens



GEORGIA

Saturday June 24, 2023

Register here for :  Atlanta  

Chamblee First United Methodist Church

4147 Chamblee Dunwoody Rd, Atlanta, GA 30341

Catering:  Time-to-Dine Catering

Start Time: 10AM for attendees

Some activities are taking place inside.  In the event of rain all activities will move indoors.

This event also has classes and speakers you don’t want to miss!


 AGENDA

8AM - Volunteer arrival

9 AM - Vendor & Sponsor arrival

10 AM - Registration/ Check-In

10:15 AM - Games open / Health Screenings

10:30AM - Welcome / Silent Auction opens

11 AM - Yoga - Tanya Leakes

11:15 AM - MyMGLife Experience opens

11:30 AM - Dr. Amy Dayries - Holistic dentist

Noon - Dr. Jasmine Johnson, PT, DPT, Cert DN - Physical Therapist

Noon- Healthy lunch (please advise of food allergies)

12:30 PM - Words from Trailblazer sponsors

1:00 PM - CPR demonstration

1:30 PM - Silent Auction & Raffle giveaway

1:45PM - Closing remarks



TEXAS

Saturday October 14, 2023

Registration: Coming soon

Texas Health Presbyterian Hospital

8200 Walnut Hill Lane

Dallas, TX 75231

Event Time: 10AM to 2PM

Sponsor / Vendor arrival 9:00 AM

Volunteer arrival 8:00AM




*** After you register email us your t-shirt size and dietary restrictions.




 

This is an opportunity to connect with others diagnosed with myasthenia gravis, learn about treatments and wellness options.    Learn about research opportunities.

For those who don’t have myasthenia gravis, we invite you to take part in our MyMGLife Challenge.  Work your way through six stations that give you an up close look into what it FEELS like to have myasthenia gravis.  This is a truly engaging activity.  


This event is FREE for attendees and does not require you to fundraise.  We want you to simply come out, learn and enjoy yourself with the games, food and silent auction.  Bring your family, friends, co-workers, etc.  as we will have somethings for everyone.   Help us spread the word.

 Our 2024  Awareness and Health Fair Dates:


Georgia - 6/08/2024

Delaware - 6/15/2024

Wisconsin - 6/22/2024

Texas - 6/29/2024





Get Involved!

Sponsors,  vendors and volunteers  are needed to help make this event a success in ALL locations.   Please  email: MGHolisticSociety@gmail.com

Sponsorship payment or Donation

About MG Holistic Society

Our core philosophy is “whole body wellness,” that addresses the physical, emotional and communication needs and challenges of people living with MG, by combining effective medical management with complementary approaches, emotional self-care and healthy lifestyle habits.  We represent “people” living with MG, not just “ patients” living with MG.  We believe this perspective is critical to disease management self-efficacy and optimized quality of life.

The Myasthenia Gravis Holistic Society is a 501(c)(3) non-profit organization and donations are tax deductible as allowed by law.


www.MGHolisticSociety.org

MG Awareness Day June 3, 2023

Join Us

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Thank you for 2022

The big day may have come and gone but we are planning our  2023 MG Awareness Days! 

Register for event

Create Awareness with our SWAG

Sponsors - 2023

MG Holistic Society - National Sponsor/Host

MG Holistic Society - National Sponsor/Host

MG Holistic Society - National Sponsor/Host

Host

MG Holistic Society - National Sponsor/Host

MG Holistic Society - National Sponsor/Host

Host

MG Holistic Society - National Sponsor/Host

Trailblazer Sponsor 2023

Trailblazer Sponsor 2023

Vanguard Sponsor (pending)

Trailblazer Sponsor 2023

Visionary Sponsor

Vanguard Sponsor (pending)

Vanguard Sponsor (pending)

Vanguard Sponsor (pending)

Vanguard Sponsor (pending)

Vanguard Sponsor (pending)

Catalyst Sponsor (pending)

Catalyst Sponsor (pending)

Catalyst Sponsor (pending)

Catalyst Sponsor

Catalyst Sponsor (pending)

Catalyst Sponsor (pending)

Catalyst Sponsor (pending)

Catalyst Sponsor (pending)

Catalyst Sponsor (pending)

Catalyst Sponsor (pending)

Catalyst Sponsor (pending)

Grassroots Sponsors

Home Infusion Company

Community Partner

Community Partner

Community Partner

Community Partner

Community Partner

Community Partner

Community Partner

Community Partner

Community Partner

Community Partner

Community Partner

Community Partner

 

Community Partner

 

Community Educator

 

Community Partner

Community Partner

Community Partner



 

 

 

Atlanta - Travel

Holiday Inn & Suites Atlanta Perimeter - Dunwoody

4401 Chamblee Dunwoody Road, Atlanta, GA, 30341


Doubletree

4386 Chamblee Dunwoody Rd, Atlanta, GA 30341

Airport

Hartsfield-Jackson International Airport


Wisconsin- Travel

Country Inn & Suites by Radisson

130 Patriot Drive, Little Chute, Wisconsin 54140

DoubleTree by Hilton Appleton

150 Nicolet Road, Appleton, Wisconsin, 54914

Free airport  shuttle 

Airport

Appleton Airport







Wilmington Travel

Hotels

Hyatt Place Riverfront 

760 Justison St, Wilmington, DE 19801



Sheraton Suites Wilmington Downtown

422 Delaware Ave, Wilmington, DE 19801





Airport

Philadelphia International Airport

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Contact Us

Volunteer Sign-up

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Volunteer Needs: Photographer, set-up/break down, station management, and media assistance.

Double Vision

MyMGLife Experience Challenge

Imagine going through your day with double vision!   Take our MyMGLife Experience and find out and more.  

About Myasthenia Gravis

 
Myasthenia Gravis is a rare chronic autoimmune neuromuscular disease that impacts the voluntary muscles.   Myasthenia Gravis literally means grave muscle weakness.  People with a diagnosis of Myasthenia Gravis may experience one or more of the symptoms referenced below.  These symptoms may come on all at once or take years to develop.  Some of the symptoms may  get better rest while other symptoms may require medication, immunotherapy, supplements or  lifestyle modification.  Each person diagnosed with MG experiences the symptoms differently, this is why it is referred to as the snowflake disease.  We are all very unique in the way MG shows up in our lives.  Additionally, people diagnosed with MG do not all respond the same to the various treatments.  

Common MG symptoms:

Double vision

Blurred vision

Drooping eye

Changes in facial expression 

Difficulty Swallowing

Fatigue

Shortness of breath

Difficulty   chewing

Difficulty walking

Impaired speech

Difficulty smiling

Difficulty talking

Muscle weakness in neck, arms, legs, hands or fingers

MG Awareness Day 6/4/2022 Green Bay

    MG Awareness Day- Atlanta 6/4/2022

    Celebration with sisters
    Myasthenia Gravis Book
    Autographed Atlanta Hawks jersey of Kevin Huerter
    Casual print purse
    Living Best Life
    Two pack Louise Hay cars deck
    Menopause and Me basket
    Causal blue purse
    Louise Hay three pack
    Teal table coverings with vegan cookbook, echo dot, chopsticks, loose tea
    Emile Bellet lithograph with certificate of authenticity
    Yoga

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