The MG Awareness Day will be an educational and interactive experience that reflects the many ways that Myasthenia Gravis affects daily living and strategies for taking control. The objective is to:
The atmosphere will embody an "edu-tainment" model with engaging activities, empowerment messaging, social interaction and wellness vendors/partners providing information and solutions.
** This is also an opportunity for the community to get FREE health screenings as part of a holistic lifestyle. We want attendees to take advantage of the FREE health screenings, games, educational materials and FREE food. Everyone MUST register for the respective city of their choice.
Visit all of our stations for a chance to win amazing prizes from our raffle!
Saturday, June 3, 2023
WISCONSIN
Register here for: Wisconsin
Neuroscience Group Field at Fox Cities Stadium
2400 N. Casaloma Drive
Appleton, WI 54913
Start time is 2pm CST for attendees
Sponsors/Vendor arrival : 1PM
2PM to 4PM - Program & MyMGLife Experience
4PM - 5PM - Chair yoga & social hour
5PM- 6:30PM - Free dinner buffet and social time.
6:30PM - Timber Rattlers game (MUST register in advance)
DELAWARE
Saturday June 17, 2023
Register here for Wilmington
Wilmington Riverfront
Constitution Yard
308 Justison Street
Wilmington, DE 19801
Start Time: 10AM to 2PM
8AM - Volunteer arrival
9AM -Sponsors/Vendors arrival
10AM - Registration/Check-in
11AM - Yoga
12 to 2PM -Chair Massage & Reiki
12 to 2PM - Axe throwing opens
GEORGIA
Saturday June 24, 2023
Register here for : Atlanta
Chamblee First United Methodist Church
4147 Chamblee Dunwoody Rd, Atlanta, GA 30341
Catering: Time-to-Dine Catering
Start Time: 10AM for attendees
Some activities are taking place inside. In the event of rain all activities will move indoors.
This event also has classes and speakers you don’t want to miss!
AGENDA
8AM - Volunteer arrival
9 AM - Vendor & Sponsor arrival
10 AM - Registration/ Check-In
10:15 AM - Games open / Health Screenings
10:30AM - Welcome / Silent Auction opens
11 AM - Yoga - Tanya Leakes
11:15 AM - MyMGLife Experience opens
11:30 AM - Dr. Amy Dayries - Holistic dentist
Noon - Dr. Jasmine Johnson, PT, DPT, Cert DN - Physical Therapist
Noon- Healthy lunch (please advise of food allergies)
12:30 PM - Words from Trailblazer sponsors
1:00 PM - CPR demonstration
1:30 PM - Silent Auction & Raffle giveaway
1:45PM - Closing remarks
TEXAS
Saturday October 14, 2023
Registration: Coming soon
Texas Health Presbyterian Hospital
8200 Walnut Hill Lane
Dallas, TX 75231
Event Time: 10AM to 2PM
Sponsor / Vendor arrival 9:00 AM
Volunteer arrival 8:00AM
*** After you register email us your t-shirt size and dietary restrictions.
This is an opportunity to connect with others diagnosed with myasthenia gravis, learn about treatments and wellness options. Learn about research opportunities.
For those who don’t have myasthenia gravis, we invite you to take part in our MyMGLife Challenge. Work your way through six stations that give you an up close look into what it FEELS like to have myasthenia gravis. This is a truly engaging activity.
This event is FREE for attendees and does not require you to fundraise. We want you to simply come out, learn and enjoy yourself with the games, food and silent auction. Bring your family, friends, co-workers, etc. as we will have somethings for everyone. Help us spread the word.
Our 2024 Awareness and Health Fair Dates:
Georgia - 6/08/2024
Delaware - 6/15/2024
Wisconsin - 6/22/2024
Texas - 6/29/2024
Sponsors, vendors and volunteers are needed to help make this event a success in ALL locations. Please email: MGHolisticSociety@gmail.com
Our core philosophy is “whole body wellness,” that addresses the physical, emotional and communication needs and challenges of people living with MG, by combining effective medical management with complementary approaches, emotional self-care and healthy lifestyle habits. We represent “people” living with MG, not just “ patients” living with MG. We believe this perspective is critical to disease management self-efficacy and optimized quality of life.
The Myasthenia Gravis Holistic Society is a 501(c)(3) non-profit organization and donations are tax deductible as allowed by law.
Join Us
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The big day may have come and gone but we are planning our 2023 MG Awareness Days!
Community Partner
4401 Chamblee Dunwoody Road, Atlanta, GA, 30341
4386 Chamblee Dunwoody Rd, Atlanta, GA 30341
Hartsfield-Jackson International Airport
130 Patriot Drive, Little Chute, Wisconsin 54140
150 Nicolet Road, Appleton, Wisconsin, 54914
Free airport shuttle
Appleton Airport
Hyatt Place Riverfront
760 Justison St, Wilmington, DE 19801
Sheraton Suites Wilmington Downtown
422 Delaware Ave, Wilmington, DE 19801
Philadelphia International Airport
Volunteer Needs: Photographer, set-up/break down, station management, and media assistance.
Imagine going through your day with double vision! Take our MyMGLife Experience and find out and more.
Myasthenia Gravis is a rare chronic autoimmune neuromuscular disease that impacts the voluntary muscles. Myasthenia Gravis literally means grave muscle weakness. People with a diagnosis of Myasthenia Gravis may experience one or more of the symptoms referenced below. These symptoms may come on all at once or take years to develop. Some of the symptoms may get better rest while other symptoms may require medication, immunotherapy, supplements or lifestyle modification. Each person diagnosed with MG experiences the symptoms differently, this is why it is referred to as the snowflake disease. We are all very unique in the way MG shows up in our lives. Additionally, people diagnosed with MG do not all respond the same to the various treatments.
Common MG symptoms:
Double vision
Blurred vision
Drooping eye
Changes in facial expression
Difficulty Swallowing
Fatigue
Shortness of breath
Difficulty chewing
Difficulty walking
Impaired speech
Difficulty smiling
Difficulty talking
Muscle weakness in neck, arms, legs, hands or fingers
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